As a program, we believe it is important for you, as the patient, to be knowledgeable and informed. Stem cell transplantation is complicated: the terminology, the medications used, and the entire process you will go through during transplant. We want you involved in your treatment so we are committed to helping you understand the transplant process. Because people learn differently, we provide education about the transplant process, both verbal and written form: interactive classes, manuals, one-on-one sessions with BMT staff, and computer-based programs.
A two-hour patient/caregiver class is held twice a month to help prepare you and your caregivers for the transplant process. It is a program requirement that you and your caregivers attend this class. Registration for the class will be arranged through your transplant coordinator.
The Patient/Caregiver Class is intended to give you a general introduction to transplant and what to expect. Topics include: a general overview of transplant, nutritional guidelines, financial and insurance issues, psychosocial issues, caregiver responsibilities, issues for patients to consider when planning for transplant, and hands-on experience doing central venous catheter (CVC) care.
A Patient and Caregiver Education Manual will be given to you by your transplant coordinator when you decide to proceed to transplant. This manual contains detailed information about all aspects of the transplant process. The manual was designed as a resource for you and your family so you can understand what to expect and how to navigate through different aspects of transplant. Some information contained in the manual will be reviewed with you by your transplant coordinator. However, you and your caregivers are also expected to review the information in the manual and ask questions about topics you do not understand.
Informal education about the transplant process will occur regularly with your transplant coordinator. She will review important aspects of the transplant process and is a good resource to address a variety of questions and concerns that arise as you prepare for transplant. Your caregivers may also contact your transplant coordinator for information.
Visits with your transplant physician are also a good opportunity to obtain information about your upcoming transplant and get your questions answered. If you need additional time with your transplant physician, please schedule a follow-up appointment specifically to address your questions and concerns.
Inpatient and outpatient BMT nurses will continue to educate you throughout your transplant about your treatments, side effects, and procedures. If you need intravenous medications or fluids at home, a homecare nurse will meet with you for one-on-one teaching so you or your caregiver are competent to provide these treatments at home.